类似的网站 Sturge-weber.Org
The Sturge-Weber Foundation
描述: The Sturge-Weber Foundation provides support and services for individuals with Sturge-Weber syndrome, Port Wine Stain Birthmarks, and Klippel-Trenaunay syndrome.
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The Sturge-Weber Syndrome Community provides information, resources, and support to those living with Sturge-Weber Syndrome.
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Provides support and information about this condition for sufferers and their families. Includes information on epilepsy, port wine stains and glaucoma.
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Provides information, support, education for Sturge-Weber Syndrome, Klippel-Trenaunay Weber Syndrome, port-wine stains sufferers. Offers education to general ...
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Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases ...
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