类似的网站 Mpssociety.Co.Uk
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描述: A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
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Informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship ...
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Non-profit organization advocating for families affected by mucopolysaccharide and related diseases. Located in Durham, North Carolina, USA.
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The Cystinosis Foundation UK is a charity concerned with promoting awareness of Cystinosis and supporting both families and medical research within the United ...
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Founded to provide information and support to affected individuals and their families.
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A star studded fantasy hockey game and auction, allowing participants to play alongside some of hockey's great alumni, while helping to educate both professionals ...
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The PAF is an organization that funds academic and medical research leading to better treatments and a cure of propionic acidemia, an inborn error of metabolism.
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A calendar of weeks based on the ISO 8601 week notation - convert any date into week number and day number.
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CM Lawyers are a dedicated team including a solicitor, conveyancer and Public Notary in Sydney. A modern legal practice in Marrickville located in Sydneys ...
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