类似的网站 Marfan.Ca
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描述: The Canadian Marfan Association (CMA) is a national charitable organization dedicated to saving lives and helping Marfan patients live a good quality of life. We are the only Association in Canada helping Marfan patients and the ...
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A global information center providing links to Marfan Syndrome Organizations aroud the world
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3.0 / 5.0, 语: English
Living with Marfan Syndrome is what this site is all about. The life story of Jon, and how he has learned to cope over the years.
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3.0 / 5.0, 语: English
Homepage of Marfan Support and Information, NSW Australia
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The Ehlers-Danlos National Foundation provides information about Ehlers-Danlos Syndrome and support to people with EDS and related disorders.
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3.0 / 5.0, 语: English
DNA Learning Center's multimedia guide to genetic disorders. Info on symptoms, cause, inheritance, and treatment. First-hand accounts from doctors and patients.
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Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
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3.0 / 5.0, 语: English
Irish charity with information on fund raising activities and the condition.
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3.0 / 5.0, 语: English
A magazine for people with lupus and their families, lupus health professionals and researchers. Published by the Lupus Foundation of America.
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3.0 / 5.0, 语: English